Information about chromosomes, projects and issues
facing people living with disability
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Interdisciplinary Net - 1st Global Conference on Empathy - Prague, 2014.
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The Thesis......
Can be found by clicking here: Griffith University Research Collection.
You will find some background information, the abstract and if you feel like grabbing a coffee, the full thesis can be downloaded. Enjoy!
It took a little while but the "The Making of 18q-: Parental Advocacy, Disability and the Ethics of Documentary Filmmaking”, our chapter in Different Bodies - Essays on Disability in Film and Television, is published and available. I thoroughly enjoyed this process working with Marja as my editor via the magic of technology transcending the Pacific! Fellow Australian, Katie Ellis' work: "This isn’t something I can fake": The Discourse of Disability Surrounding Glee!" is also available in the volume together with some good reads but great authors.
Edited by Marja Mogk, Ph.D,. Associate Professor of English, California Lutheran University,
Publisher McFarland & Company (US)
About the Book
This collection of 19 new essays by 21 authors from the United States, the UK, Canada, Australia and India focuses on contemporary film and television (1989 to the present) from those countries as well as from China, Korea, Thailand and France. The essays are divided into two parts. The first includes critical readings of narrative film and television. The second includes contributions on documentaries, biopics and autobiographically-informed films.The book as a whole is designed to be accessible to readers new to disability studies while also contributing significantly to the field. An introduction gives background on disability studies and appendices provide a filmography and a list of suggested reading.
The book is available via various outlets including Amazon
Edited by Marja Mogk, Ph.D,. Associate Professor of English, California Lutheran University,
Publisher McFarland & Company (US)
About the Book
This collection of 19 new essays by 21 authors from the United States, the UK, Canada, Australia and India focuses on contemporary film and television (1989 to the present) from those countries as well as from China, Korea, Thailand and France. The essays are divided into two parts. The first includes critical readings of narrative film and television. The second includes contributions on documentaries, biopics and autobiographically-informed films.The book as a whole is designed to be accessible to readers new to disability studies while also contributing significantly to the field. An introduction gives background on disability studies and appendices provide a filmography and a list of suggested reading.
The book is available via various outlets including Amazon
Publications about 18q- A different kind of normal. (aka 18q - a valuable life)
Film and History Conference Chicago
October 30 – November 3, 2008
Paper and presentation:: A Valuable Life: Reterritorializing Genetic Disability in Australia & the Documentary 18q
The Australian Council of University and Art Design Schools, Adelaide
October 1 – October 3 2008
Paper and Presentation: “Bend Break or Defend”
Conference Papers – Veronica Wain
Media and Culture Journal
Media Culture Journal :: "Able to Live, Laugh and Love”
Published July 2008
Recommended Readings - by me!
'Missing discourses: concepts of joy and happiness in disability'
Sunderland, Naomi , Catalano, Tara and Kendall, Elizabeth(2009) , Disability & Society, 24: 6, 703 — 714
October 30 – November 3, 2008
Paper and presentation:: A Valuable Life: Reterritorializing Genetic Disability in Australia & the Documentary 18q
The Australian Council of University and Art Design Schools, Adelaide
October 1 – October 3 2008
Paper and Presentation: “Bend Break or Defend”
Conference Papers – Veronica Wain
Media and Culture Journal
Media Culture Journal :: "Able to Live, Laugh and Love”
Published July 2008
Recommended Readings - by me!
'Missing discourses: concepts of joy and happiness in disability'
Sunderland, Naomi , Catalano, Tara and Kendall, Elizabeth(2009) , Disability & Society, 24: 6, 703 — 714
Positive Exposure
Rick Guidotti's Positive Exposure is a unique endeavour spanning the globe and determined to change the face of beauty. Rick is part of the Chromosome 18 community and attends the International Conference each year in the United States.
The Pearls Project
The Pearls Project
Positive Exposure has pioneered another great project - The Pearls Project The movement was recently featured in the New York Times and is:
'a ground-breaking educational tool which invites students to learn about their peers living with genetic, physical and behavioral differences through an image gallery and safe online blog."
The Program Manager is Liz Grossman, mother to Tahlia, born with a difference on the 18th chromosome.
Positive Exposure has pioneered another great project - The Pearls Project The movement was recently featured in the New York Times and is:
'a ground-breaking educational tool which invites students to learn about their peers living with genetic, physical and behavioral differences through an image gallery and safe online blog."
The Program Manager is Liz Grossman, mother to Tahlia, born with a difference on the 18th chromosome.
Including Samuel - documentary and social justice
Including Samuel is really the inspiration for creating this website. Researching material for my thesis found me engulfed in this powerful work and what is becoming a global movement addressing inclusion for people living with disability.
Unique
Unique is a European based group formed for the support of people born with genetic difference. The Little Yellow Book is an easy to understand guide to chromosomes and how they work.